#428: Eye Know

March 29, 2023

Tess heads to the eye doctor. For a lonnnnnng appointment.

#427: Shawdiya

March 22, 2023

It's the end of an era. The final shift of someone who knows Tess and has helped her immeasurably.

#426: I Was Wrong

March 15, 2023

Counting our chickens before they have hatched. Got an update for ya this week on how Tess fared with her recent bout with Covid.

#425: Round 2

March 8, 2023

A week has just been 86'd. A big, big change of plans in our house for Tess.

#424: B

March 1, 2023

B. It's the first letter of my first and last name. It's the name we all give to the plan that we pursue when the original plan isn't working out. And B also marks a new status for my partner Daniel and me, starting now. Hooray!

#423: Remember Sports

February 22, 2023

Two fans and a laptop. Tess discovers a new musical genre. What's the verdict?

We explore Philadelphia-based band Remember Sports, specifically the track "Otherwise," from their 2018 record Slow Buzz.

#422: A Million Times Better Than Stuff

February 15, 2023

I'm a year older. Blowing out the candles on this year's cake, what's on my mind?

#421: Oh Say Can You See

February 8, 2023

CVI stands for Cortical Visual Impairment. Tess has it, as do many people with Hao-Fountain Syndrome. But did you know that there's something you can do about CVI?

#420: Nu Shooz

February 1, 2023

Let's hop into the car and head out, shall we? We're going on a shopping trip. Let's find Tess some new shoes.

#419: Tess Knows How to Deal

January 25, 2023

Life with Tess can be pretty darn challenging sometimes. When things go south, there's one method we have that always makes everything better. It requires no equipment, it travels with us wherever we go, and it costs zero dollars.

#418: Start Here

January 18, 2023

So you or someone you love has been diagnosed with Hao-Fountain Syndrome. Now what?

#417: The Box on Our Doorstep

January 11, 2023

A return to skiing. We heard about something amazing from Tess a week ago, and we had to see it for ourselves.

#416: Slide Slide Slippity Slide

January 4, 2023

Tess hits the slopes for another season with Maine Adaptive, her ninth year of skiing. Only this time she decides to make a massive change.

#415: Have Sequins, Will Travel

December 28, 2022

The mud room. It's our point of departure when we leave our house. And in that room, post-Christmas, Tess unleashes a neat-o surprise.

#414: Fidget

December 21, 2022

Certain handheld objects give Tess a sense of peace. They keep her from getting bored.

#413: Germany Part 3

December 14, 2022

The phenotyping study begins for our girl in Germany. How does Miss Tess do?

#412: Germany Part 2

December 7, 2022

We explore Heidelberg, getting some z's but not a lot. And we finally meet up with the scientist who knows more about Hao-Fountain than anyone else.