This week, there's a bakery inside your body, and Tess's bakery has a staffing problem.
Read MoreSED 590: A Hitch in Her Step
This week, a mysterious hitch in Tess's step has us thinking of a rough time from long ago.
Read MoreSED 589: IEP Meeting - All About the Coffee part 2
This week, the long-awaited part two about Tess's IEP for this year.
Read MoreSED 588: Beach Plus Pica
This week, Tess goes somewhere she hasn't been in many years, a place we've avoided for a very good reason.
Read MoreSED 587: You Answered - A Project Centauri Update
This week, I called, you answered. An update on Project Centauri, our effort to get 100 new families on Matrix.
Read MoreSED 586: A Critical Mistake
This week, a critical mistake lands Tess back in the emergency room.
Read MoreSED 585: How We're Using AI to Help Cure our Rare Disease
This week, I want to tell you about how I'm using AI to help with our foundation's work in our quest for a cure or treatment for Hao-Fountain syndrome.
Read MoreSED 584: Tuning In
This week, we're delighted as Tess expands her video library into uncharted territory.
Read MoreSED 583: Project Centauri
This week, we're launching a new initiative that's going to make our Hao-Fountain crew a million times stronger.
Read MoreSED 582: Tess Skips Breakfast
This week, it's an earth metal, a chemical element, a thing you can use when making fireworks. And hey, maybe we should drink it.
Read MoreSED 581: IEP Meeting - All About the Coffee part 1
This week, the three letters that have often invoked dread in many a parent are instead making me feel positively gleeful about our girl.
Read MoreSED 580: Mystery Tess
This week, we're working hard to manage some new factors in Tess's life.
Read MoreSED 579: Get On Matrix Already
This week, we know what we need in order to get to a cure or treatment for Hao-Fountain syndrome. And you can help.
Read MoreSED 578: Get Well Soon
This week, a couple fun updates about Tess's re-entry after her seizure.
Read MoreSED 577: Many Moons
This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 5 of 5.
Read MoreSED 576: A New Record
This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 4 of 5.
Read MoreSED 575: Shark Fins
This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 3 of 5.
Read MoreSED 574: The Woods
This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility.
Read MoreSED 573: Into the Woods
This week, Tess has a life-threatening event, at a time when we're very far from the closest medical facility.
Read MoreSED 572: Holiday Break
This week, we're away on a ski vacation as a family. Let's check in with Tess.
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