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Special Education: 25 Power Moves to Make Your Child Seen and Known at School - Part 1 of 2

July 10, 2024

Special Education: 25 Power Moves to Make Your Child Seen and Known at School
Bo Bigelow
Featured
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May 20, 2026
SED 592: Dad Camp
May 20, 2026

This week, summer lasts about three months and Tess has summer school for 18 days of it.

May 20, 2026
SED 591: What Happens When the Pastry Department Never Opens
May 13, 2026
SED 591: What Happens When the Pastry Department Never Opens
May 13, 2026

This week, there's a bakery inside your body, and Tess's bakery has a staffing problem.

May 13, 2026
SED 590: A Hitch in Her Step
May 6, 2026
SED 590: A Hitch in Her Step
May 6, 2026

This week, a mysterious hitch in Tess's step has us thinking of a rough time from long ago.

May 6, 2026
SED 589: IEP Meeting - All About the Coffee part 2
April 29, 2026
SED 589: IEP Meeting - All About the Coffee part 2
April 29, 2026

This week, the long-awaited part two about Tess's IEP for this year.

April 29, 2026
SED 588: Beach Plus Pica
April 22, 2026
SED 588: Beach Plus Pica
April 22, 2026

This week, Tess goes somewhere she hasn't been in many years, a place we've avoided for a very good reason.

April 22, 2026
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April 15, 2026
SED 587: You Answered - A Project Centauri Update
April 15, 2026

This week, I called, you answered. An update on Project Centauri, our effort to get 100 new families on Matrix.

April 15, 2026
April 8, 2026
SED 586: A Critical Mistake
April 8, 2026

This week, a critical mistake lands Tess back in the emergency room.

April 8, 2026
April 1, 2026
SED 585: How We're Using AI to Help Cure our Rare Disease
April 1, 2026

This week, I want to tell you about how I'm using AI to help with our foundation's work in our quest for a cure or treatment for Hao-Fountain syndrome.

April 1, 2026
SED 584: Tuning In
March 25, 2026
SED 584: Tuning In
March 25, 2026

This week, we're delighted as Tess expands her video library into uncharted territory.

March 25, 2026
SED 583: Project Centauri
March 18, 2026
SED 583: Project Centauri
March 18, 2026

This week, we're launching a new initiative that's going to make our Hao-Fountain crew a million times stronger.

March 18, 2026
SED 582: Tess Skips Breakfast
March 11, 2026
SED 582: Tess Skips Breakfast
March 11, 2026

This week, it's an earth metal, a chemical element, a thing you can use when making fireworks. And hey, maybe we should drink it.

March 11, 2026
SED 581: IEP Meeting - All About the Coffee part 1
March 4, 2026
SED 581: IEP Meeting - All About the Coffee part 1
March 4, 2026

This week, the three letters that have often invoked dread in many a parent are instead making me feel positively gleeful about our girl.

March 4, 2026
February 25, 2026
SED 580: Mystery Tess
February 25, 2026

This week, we're working hard to manage some new factors in Tess's life.

February 25, 2026
SED 579: Get On Matrix Already
February 18, 2026
SED 579: Get On Matrix Already
February 18, 2026

This week, we know what we need in order to get to a cure or treatment for Hao-Fountain syndrome. And you can help.

February 18, 2026
SED 578: Get Well Soon
February 11, 2026
SED 578: Get Well Soon
February 11, 2026

This week, a couple fun updates about Tess's re-entry after her seizure.

February 11, 2026
SED 577: Many Moons
February 4, 2026
SED 577: Many Moons
February 4, 2026

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 5 of 5.

February 4, 2026
SED 576: A New Record
January 28, 2026
SED 576: A New Record
January 28, 2026

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 4 of 5.

January 28, 2026
SED 575: Shark Fins
January 21, 2026
SED 575: Shark Fins
January 21, 2026

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 3 of 5.

January 21, 2026
SED 574: The Woods
January 14, 2026
SED 574: The Woods
January 14, 2026

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility.

January 14, 2026
SED 573: Into the Woods
January 7, 2026
SED 573: Into the Woods
January 7, 2026

This week, Tess has a life-threatening event, at a time when we're very far from the closest medical facility.

January 7, 2026
SED 572: Holiday Break
December 31, 2025
SED 572: Holiday Break
December 31, 2025

This week, we're away on a ski vacation as a family. Let's check in with Tess.

December 31, 2025
SED 571: Waiting
December 24, 2025
SED 571: Waiting
December 24, 2025

This week, we're on pins and needles, waiting for a very special milestone. 

December 24, 2025
SED 570: Still Ill
December 17, 2025
SED 570: Still Ill
December 17, 2025

This week, the illness continues, believe it or not. We'll check in on our girl.

December 17, 2025
SED 569: The Cup Is Already Broken
December 10, 2025
SED 569: The Cup Is Already Broken
December 10, 2025

This week, someone in our house is considerably under the weather.

December 10, 2025
SED 568: Never Get a Car from GM and Other True Stories
December 3, 2025
SED 568: Never Get a Car from GM and Other True Stories
December 3, 2025

This week, got a few fun stories for ya. Vignettes, if you will.

December 3, 2025
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November 26, 2025
SED 567: Thankful for Empatica and the Epimonitor
November 26, 2025

This week, a nifty tech device gets strapped to Tess's wrist.

November 26, 2025
SED 566: Riding the Waves of Life
November 19, 2025
SED 566: Riding the Waves of Life
November 19, 2025

This week, an emerging artist in Maine works with multiple media and begins an exhibition at a local gallery.

November 19, 2025
November 12, 2025
SED 565: Backseat Driver
November 12, 2025

This week, in the backseat of a car in Maine, someone had something to say.

November 12, 2025
SED 564: Sixteen
November 5, 2025
SED 564: Sixteen
November 5, 2025

This week, this very day in fact, Tess is celebrating a special birthday. This is sixteen.

November 5, 2025
SED 563: Tess the Freshman
October 29, 2025
SED 563: Tess the Freshman
October 29, 2025

This week, we're talking about Tess's high school experience. She's been a freshman for about 8 weeks now, so I'll tell you how it's been for her so far.

October 29, 2025

About

You're a parent or caretaker of someone with disabilities. It's crazy hard, but you can handle all the challenges that come your way, and Bo Bigelow will show you how. 

Bo Bigelow is the father and primary caretaker of Tess, age 14, who has a rare genetic disorder that causes nonverbal autism, communication disorders, and epilepsy. Bo is an award-winning speaker, writer, filmmaker, and advocate for people with disabilities. He is also a practicing disability-rights attorney. Whether speaking up for Tess's education, navigating appointments and insurance coverage, or simply making Tess seen and known, he's developed tons of actionable tools to help you crush it and get it all done, without losing your own sanity and identity.  

Bo is a co-founder of DISORDER: The Rare Disease Film Festival and The Disorder Channel.

Over the years, he's told Tess's story to NPR, NBC News, ABC News, The Washington Post, and The Atlantic.