How do you handle evaluations when every question feels like a punch to the gut, and the evaluators hold all the power over your child's future?

Feeling burned out as a caregiver? What if the simple act of leaving your house could be the key to restoring your energy and creating meaningful connections?

Are the holidays leaving you feeling drained instead of joyful?

Have you ever felt isolated, like no one around you understands the unique struggles you're facing? For parents of children with rare diseases, this feeling can be a daily reality.

Ever feel like you’re running on empty, with no time to refuel? What if you could recharge without needing hours to yourself?

Are you feeling overwhelmed by the countless therapies and appointments involved in caring for your child with a rare disease?

Are you and your partner truly aligned when it comes to supporting your child with a rare disease, or are you struggling to get on the same page?

Ever found yourself dreading travel because of the unique challenges autism brings along? What if I told you 14 hacks could make your next trip a breeze?

Ever found yourself dreading travel because of the unique challenges autism brings along? What if I told you 14 hacks could make your next trip a breeze?

Have you ever wondered if a simple change in diet could dramatically improve your child’s cognitive function and overall health?

What do you do when people stare at your child with a rare disease? How can you turn that awkward moment into an opportunity for connection?

Are you looking to get organized and level up your productivity?

Are you struggling to balance the needs of your neurotypical child while raising a sibling with a rare disease?

Quick update about Miss Tess and her adventures at summer camp.

Do you dread the exhausting ordeal of taking your child with a rare disease to the doctor?

I have watched you on the shore, standing by the ocean's roar. Do you love me? Do you, surfer girl?

Taking some time this week to reflect on community. The one we've built and continue to build, and what it means for Tess and our family.

If you have a kid with disabilities, your life is full of stuff you'd perhaps rather not do. Go to a million appointments, wind up in hospitals, deal with paperwork. But there are three letters that create more dread than nearly everything else.

I'm in the bleachers at a field. I watch two opposing lacrosse players collide with a massive crunch that's audible from the stands. Many parents gasp. I don't. I just watch in dismay and disbelief.