Last summer, I made a big change to this show. Now, I’m changing it back. In this episode, I share why—and how a recent ski day with Tess, in zero-degree weather, reminded me of something important. Tune in to hear the full story.

What if the way you think about aging is making caregiving even harder?

How do you keep going when rare-disease parenting constantly upends your plans?

Have you ever had to outsmart someone who seems to have superhuman strength and an endless appetite?

Have you ever struggled with the idea of asking for help--feeling like you need to power through alone? What if embracing help could transform your family’s well-being?

Have you ever woken up in the middle of the night to a situation so surprising, it leaves you both laughing and shaking with relief?

How do you handle evaluations when every question feels like a punch to the gut, and the evaluators hold all the power over your child's future?

Feeling burned out as a caregiver? What if the simple act of leaving your house could be the key to restoring your energy and creating meaningful connections?

Are the holidays leaving you feeling drained instead of joyful?

Have you ever felt isolated, like no one around you understands the unique struggles you're facing? For parents of children with rare diseases, this feeling can be a daily reality.

Ever feel like you’re running on empty, with no time to refuel? What if you could recharge without needing hours to yourself?

Are you feeling overwhelmed by the countless therapies and appointments involved in caring for your child with a rare disease?

Are you and your partner truly aligned when it comes to supporting your child with a rare disease, or are you struggling to get on the same page?

Ever found yourself dreading travel because of the unique challenges autism brings along? What if I told you 14 hacks could make your next trip a breeze?

Ever found yourself dreading travel because of the unique challenges autism brings along? What if I told you 14 hacks could make your next trip a breeze?

Have you ever wondered if a simple change in diet could dramatically improve your child’s cognitive function and overall health?

What do you do when people stare at your child with a rare disease? How can you turn that awkward moment into an opportunity for connection?

Are you looking to get organized and level up your productivity?

Are you struggling to balance the needs of your neurotypical child while raising a sibling with a rare disease?

Quick update about Miss Tess and her adventures at summer camp.

Do you dread the exhausting ordeal of taking your child with a rare disease to the doctor?