Uncharted Territory: ADHD, Rare Disease, and the Struggles with Medication

Uncharted Territory: ADHD, Rare Disease, and the Struggles with Medication

What happens when your child with a rare disease reacts unpredictably to a medication meant to help them focus and thrive?

In this episode, we explore Tess’s journey with ADHD, rare disease, and her unexpected reaction to a new medication—highlighting the complex realities of balancing treatments and unknowns. Whether you’re a parent navigating similar challenges or a caregiver seeking insights, this episode is for you.

  • Understand the complexities of combining anxiety and ADHD treatment with rare disease care.

  • Learn why it’s crucial to monitor your child’s response to new medications.

  • Gain reassurance that you’re not alone in facing these unpredictable parenting challenges.

Press play to hear this heartfelt episode and gain practical advice for navigating the uncharted territory of rare disease parenting.

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