One of the hardest things about raising a kid with a rare disease is raising their neurotypical sibling at the same time.
I talk to other parents of kids with rare stuff or other kinds of disabilities, and there's this pattern. The siblings grow up fast. Way faster than we want them to. They see things and hear things. They feel the stress in the household, even if you try to hide it.
This podcast is sponsored by The Disorder Channel. It’s 100% devoted to programming about rare diseases and other types of disabilities. You can add it for free right now on Roku and Amazon Fire TV. The Disorder Channel—the most rare stories in the world. https://www.thedisordercollection.com/
Check out my YouTube Channel: https://www.youtube.com/bobigelow
Learn more about our life with Tess on my blog: http://www.portlandrootsmedia.com/stronger-every-day-blog-1