If you're trying to cure a rare disease, there are two tools that you can't live without.
Read More
#392: Where the Checks Go
Happy to tell you this week about the next phase of our search for a cure or treatment for Hao-Fountain Syndrome.
Read More#349: Take It to the Bank
Taking a major step in moving toward a cure for Hao-Fountain Syndrome. Starting something up that will let us collaborate like never before.
Read More#324: It's Go Time
I have a thrilling announcement that I've been waiting for months and years to share with you. At long last, after many false starts, it's go time.
Read More
#300: Chicago, in Your Living Room
We shoulda been in the Windy City this week. And we weren't. But we did go to a place that made a difference and moved the needle.
Read More#249: Getting on the Map Pt 2
The map turns out to be the key to everything we're doing right now. I'm talking about the rare-disease map. We want to get on it. And it is slowly beginning to happen.
Read More#243: Hiring Bruce Banner
The future is now. We are about to hire Bruce Banner.
Read More