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#200: The Smartest

November 14, 2018

Working on USP7 is gonna require some super-intelligent solutions. And I went on a trip to find them.

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Tags undiagnosed syndrome, NIH, UDN, genetics
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#171: Jackie Chan, Prohibition's End, and Us

April 25, 2018

April 7th. The birthdays of Billie Holiday, Jackie Chan, and Russell Crowe. Also the day that prohibition ended in the US. And now a red-letter day in our house as well.

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Tags USP7, undiagnosed syndrome
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#19: Label My Kid Please

May 27, 2015

On this week's show, labels. Why we want one for Tess. Why, without a label for her, it's much harder to make plans for education and services. And why it seems like we might never get one. 

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Tags global developmental delay, diagnosis, genome mapping, undiagnosed syndrome, orphan disease, Manton Center for Orphan Disease Research, syndromes without a name, hip dysplasia
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I've been writing about Tess since February 2014.

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