Tess has had multiple surgeries over the years. And we, much to our chagrin, are not outta the woods yet on the T-Bird's hips.
Read More#262: The One-Day Exhibit
You can touch it, knock on it, do whatever you want. An art exhibit that was practically made for Tess.
Read More#261: The Lockup
Hot pizza. A rockin’ band. And a mysterious trigger for a very autism weekend.
Read More#260: Her Aim Is True
Sometimes a situation is going well. And we don't want to say a word, lest we jinx it. Because maybe we'll be unlucky enough to lose a special person in Tess's life.
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#259: My Music Buddy (rerun)
Happy New Year! Bringing back episode 210 for ya, all about Tess and her love affair with music.
Read More#258: Happy and Merry
Not sure what it is, but I seem to keep having these moments in elevators.
Read More#257: Begrudgingly
Tess's long-term memory is improving. Sometimes now she even holds a grudge after a certain person has gotten on her nerves. And sometimes that person is me.
Read More#256: White Discourtesy Telephone
It's a tale as old as time. A car, hurtling down the highway. A family riding therein. And the youngest child, becoming bored, decides to mess with the people around her.
Read More#255: Tess Does a Can Opener
Our girl is, to say the least, incredibly busy.
Read More#254: Festival Pt 2
I'm a crier. I admit it. My wife busts my chops about it. I've been known to weep at cereal commercials. And in San Francisco this year, there was no shortage of tears.
Read More#253: Festival
I just wrapped up year two of a massive project. About Tess. And USP7. And some of the other 6999 other rare diseases.
Read More#252: I Really Can't Talk Right Now
Due to circumstances, Imma keep it short this week. Really short.
Read More#251: Back on Track
If they gave out punch cards for medical appointments, with frequent flyer miles for our Tess, she'd have enough points for a trip around the world at this point.
Read More#250: Special 250th Episode
My wife and I are good at some things. But we are terrible at sitting still, for even a short while. We are bad at the pastime of doing nothing.
Read More#249: Getting on the Map Pt 2
The map turns out to be the key to everything we're doing right now. I'm talking about the rare-disease map. We want to get on it. And it is slowly beginning to happen.
Read More#248: Getting on the Map
New Orleans. Known for beignets, Mardi Gras, and conferences about rare neurodevelopmental disorders.
Read More#247: For Tess, Seeing Is Believing
TBE. Maybe you know what this stands for.
Read More#246: Back to Global Genes Pt 2
Copying homework is exactly what you should do.
Read More#245: Back to Global Genes
In 2015, I was just starting out. Fresh out of the long, winding, painful chute of diagnosis with our T-Bird. What a difference 1460 days make.
Read More#244: The Light Fantastic
Austria. The land of the Von Trapps. The composers Schubert and Liszt. And the chef Wolfgang Puck. And also the home of a guy whose work you might have seen, if you've ever gone to a rave in Vienna.
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