Taking some time this week to reflect on community. The one we've built and continue to build, and what it means for Tess and our family.
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#491: Three Little Letters
If you have a kid with disabilities, your life is full of stuff you'd perhaps rather not do. Go to a million appointments, wind up in hospitals, deal with paperwork. But there are three letters that create more dread than nearly everything else.
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#490: Crunch
I'm in the bleachers at a field. I watch two opposing lacrosse players collide with a massive crunch that's audible from the stands. Many parents gasp. I don't. I just watch in dismay and disbelief.
Read More#489: Becoming an APS - Two Rare-Disease Tools I Can't Live Without
If you're trying to cure a rare disease, there are two tools that you can't live without.
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#488: The Cloak of Ban D'aid
It's a common problem in our house. A certain young lady who gets cuts from time to time. And who hates Band-Aids more than anything.
Read More#487: Nate the Ultra-Fantastic
I want to tell you a story this week of someone who grew up here in Maine. I've gotten to know him over the past few months, and he recently raised his hand, boldly stepped forward, and made a massive difference for Tess and our foundation.
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#486: Trampopoline
To quote Princess Leia, the more you tighten your grip, the more star systems will slip through your fingers.
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#485: Costa Rica - Part 2
More stories from near the equator. Part 2 of 2 about our recent trip with Tess to Costa Rica.
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#484: Costa Rica - Part 1
It's time. It's time to take Tess out of the United States and into another country.
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#483: I Can Do It, I Know How
We have a saying in our house. We talk about "the age of independence". And yes, there are some eyerolls from our kids, but we push them to do stuff for themselves.
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#482: Eclipse
A rare event. A solar eclipse in the United States. Where was Tess on that day, and what was she doing?
Read More#481: A Massive Piece of the Quest for a Cure
You're busy. Sometimes you think about how busy you were a year ago and think wistfully--man, that wasn't busy at all compared to now! But in spite of this busyness, there's something that's required from all Hao-Fountain patients.
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#480: Thirteen Gallons of Milk
I always tell you I got more questions than answers. But this week, I've come up with an answer. And it's helping me every single day.
#479: Banquet
Student-athlete Tess. She's been on a team this winter through her school, and we've just come off a massive, colossal celebration of the whole shebang.
#478: Sunday Bloody Sunday
Sometimes when you're on the road, your plans go out the window. You have only a fraction of the stuff you need. But something unexpected comes up. And you have to MacGyver a solution.
Read More#477: ET and Elliott
Tess has this thing. It's not a superpower, but a way of seeing the world. The best way to describe it comes from a movie from 1982.
#476: Breathe
Tess has developed a new habit. It's about her breathing. And it seems like she may be trying to tell us something.
Read More#475: Awaken
If you're like me, you're bombarded these days with articles all about the importance of regularly getting good sleep. My wife and I would do this if we could. But instead, we have children.
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#474: Fifty
I have aged. Since the last time we were together, I've passed the half-century mark. And I have a few thoughts for ya.
Read More#473: The Trails Are Yours
Come spend a day on a snowy peak here in Maine. Come watch our Tess as she puts on her ski coat and hits the slopes once again.
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