Medical Visits: Essential Moves for Rare-Disease Parents to Get Your Kid Feeling Better Without Depleting Yourself -- Part 2 of 2

How could you change your mindset about taking your child with a rare disease to the doctor?

Doctor visits can be overwhelming, especially when managing complex medical needs and balancing your family's well-being. This episode is about your mindset--learning to trust yourself and others.

1. Enlist two types of co-pilots for visits to make sure you don't miss anything.

2. Trust yourself, since you know your child better than anyone.

3. Hear from Harvard-educated pediatrician Dr. Bell about the best ways to help your doctor help you.

Tune in now to gain these actionable tips to make the most of doctor visits!

#487: Nate the Ultra-Fantastic

I want to tell you a story this week of someone who grew up here in Maine. I've gotten to know him over the past few months, and he recently raised his hand, boldly stepped forward, and made a massive difference for Tess and our foundation.  

Read More