Ever found yourself dreading travel because of the unique challenges autism brings along? What if I told you 14 hacks could make your next trip a breeze?
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Traveling with Autism: 14 Essential Hacks for a Smoother Journey - Part 1 of 2
Ever found yourself dreading travel because of the unique challenges autism brings along? What if I told you 14 hacks could make your next trip a breeze?
Read MoreUnlocking Tess’s Potential: How a Simple Diet Change Transformed Her Health - Part 2 of 2
Have you ever wondered how the right diet could drastically improve your child's health, especially if they're dealing with complex medical conditions?
Read MoreUnlocking Tess’s Potential: How a Simple Diet Change Transformed Her Health - Part 1 of 2
Have you ever wondered if a simple change in diet could dramatically improve your child’s cognitive function and overall health?
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From Stares to Support: Navigating Public Reactions and Guiding Loved Ones in Caring for Your Child
What do you do when people stare at your child with a rare disease? How can you turn that awkward moment into an opportunity for connection?
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Eight Tools to Get Organized and Run Your Household Better
Are you looking to get organized and level up your productivity?
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Empowering the Neurotypical Sibling
Are you struggling to balance the needs of your neurotypical child while raising a sibling with a rare disease?
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Tess Goes to Camp
Quick update about Miss Tess and her adventures at summer camp.
Read MoreMedical Visits: Essential Moves for Rare-Disease Parents to Get Your Kid Feeling Better Without Depleting Yourself -- Part 2 of 2
How could you change your mindset about taking your child with a rare disease to the doctor?
Doctor visits can be overwhelming, especially when managing complex medical needs and balancing your family's well-being. This episode is about your mindset--learning to trust yourself and others.
1. Enlist two types of co-pilots for visits to make sure you don't miss anything.
2. Trust yourself, since you know your child better than anyone.
3. Hear from Harvard-educated pediatrician Dr. Bell about the best ways to help your doctor help you.
Tune in now to gain these actionable tips to make the most of doctor visits!
Medical Visits: Essential Moves for Rare-Disease Parents to Get Your Kid Feeling Better Without Depleting Yourself
Do you dread the exhausting ordeal of taking your child with a rare disease to the doctor?
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How to Get an Autism Spectrum Diagnosis and Why It Matters More Than Ever
Are you worried your child might be struggling with social interactions or communication, and wondering if it could be autism?
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Health Insurance: 7 Tips to Beat the Insurance Company and Get Your Family's Bills Covered
Have you ever felt like navigating insurance claims for your child with disabilities is a full-time job?
As a parent or caregiver of a child with disabilities, you’re likely dealing with an overwhelming number of medical appointments and insurance claims. This episode addresses how you can simplify this process and ensure you get the coverage you deserve without the added stress.
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Special Education: 25 Power Moves to Make Your Child Seen and Known at School - Part 2 of 2
Are you ready to navigate the complex world of special education and become the best advocate for your child?
This episode (part 2 of 2) dives into the challenges and triumphs of special education, offering insights that directly address the struggles many parents face today. If you’re seeking ways to better support your child’s educational journey and ensure their rights are upheld, this is a must-listen.
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Special Education: 25 Power Moves to Make Your Child Seen and Known at School - Part 1 of 2
Are you ready to navigate the complex world of special education and become the best advocate for your child?
This episode dives into the challenges and triumphs of special education, offering insights that directly address the struggles many parents face today. If you’re seeking ways to better support your child’s educational journey and ensure their rights are upheld, this is a must-listen.
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#494: Surfer Girl
I have watched you on the shore, standing by the ocean's roar. Do you love me? Do you, surfer girl?
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#493: The Eyes Have It
One day, in a nondescript office building in Portland, three adults give something to Tess. And she comes alive.
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#492: Community
Taking some time this week to reflect on community. The one we've built and continue to build, and what it means for Tess and our family.
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#491: Three Little Letters
If you have a kid with disabilities, your life is full of stuff you'd perhaps rather not do. Go to a million appointments, wind up in hospitals, deal with paperwork. But there are three letters that create more dread than nearly everything else.
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#490: Crunch
I'm in the bleachers at a field. I watch two opposing lacrosse players collide with a massive crunch that's audible from the stands. Many parents gasp. I don't. I just watch in dismay and disbelief.
Read More#489: Becoming an APS - Two Rare-Disease Tools I Can't Live Without
If you're trying to cure a rare disease, there are two tools that you can't live without.
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