Today we're gonna talk about Miss Tess's recent visit to the dentist.
Read MoreSED 533: Zero Turnovers
Today we're talking a bit more about basketball and what it means to Tess.
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SED 532: More Talking Without Words
Today we're gonna talk more about the podcast The Telepathy Tapes and how it applies to our Tess.
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SED 531: This Will Be Our Year
Today I'll be giving you an update on some of the thrilling developments of our foundation in our quest for a cure for Tess and the other patients.
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SED 530: Dunk You Very Much
Today I'll be telling you more about Tess playing basketball, and a new development for her on the court.
Read MoreSED 529: Talking Without Words
Today I'm talking about the ability to read minds. And how it might affect our relationship with Tess.
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SED 528: Pizza Vacuum
Today we're talking about an irksome behavior of Tess's, something that's happening more and more frequently, and what it could mean.
Read MoreSED 527: Why I'm Changing the Show Back
Last summer, I made a big change to this show. Now, I’m changing it back. In this episode, I share why—and how a recent ski day with Tess, in zero-degree weather, reminded me of something important. Tune in to hear the full story.
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Stronger Every Season: A Caregiver’s Mindset Shift
What if the way you think about aging is making caregiving even harder?
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Max Flex: The Rare-Disease Parent’s Superpower for Navigating Uncertainty
How do you keep going when rare-disease parenting constantly upends your plans?
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Stepping Forward: How Shoes and Therapy Transformed Tess’s Confidence
What if a simple tweak in your child's footwear or a new approach to therapy could drastically improve their confidence and mobility?
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Creative Workarounds for Extraordinary Challenges: Life with Tess
Have you ever had to outsmart someone who seems to have superhuman strength and an endless appetite?
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Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 2 of 2
Have you ever been told you're wrong about your child’s needs, only to trust your gut and be proven right?
Read MoreSeeing the Unseen: Navigating CVI and the Power of Being Heard - Part 1 of 2
What happens when a medical professional dismisses your concerns about your child’s health? How do you move forward when you're made to feel like you're imagining things?
Read MoreThe Power of Accepting Help: A Farewell to Shawdiya
Have you ever struggled with the idea of asking for help--feeling like you need to power through alone? What if embracing help could transform your family’s well-being?
Read MoreUnlocked: Tess’s Midnight Adventure and the Lessons It Taught Us
Have you ever woken up in the middle of the night to a situation so surprising, it leaves you both laughing and shaking with relief?
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Turning the Tables: How to Face Evaluations and Advocate for Your Child
How do you handle evaluations when every question feels like a punch to the gut, and the evaluators hold all the power over your child's future?
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Burnout Busters: How Caregivers Can Find Energy and Connection Outside the Home
Feeling burned out as a caregiver? What if the simple act of leaving your house could be the key to restoring your energy and creating meaningful connections?
Read MoreFilling Your Bucket: Stress-Free Holidays for Rare Disease Families
Are the holidays leaving you feeling drained instead of joyful?
Read MoreUncharted Territory: ADHD, Rare Disease, and the Struggles with Medication
What happens when your child with a rare disease reacts unpredictably to a medication meant to help them focus and thrive?
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