Ever feel like you’re running on empty, with no time to refuel? What if you could recharge without needing hours to yourself?
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Building Your Child's Dream Team: Navigating Therapies for Rare Diseases
Are you feeling overwhelmed by the countless therapies and appointments involved in caring for your child with a rare disease?
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Stronger Together: Aligning with Your Partner on the Rare Disease Journey
Are you and your partner truly aligned when it comes to supporting your child with a rare disease, or are you struggling to get on the same page?
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Tech Solutions for Easier Communication: Helping Your Neurodiverse Child Express and Self-Soothe
Have you ever struggled to find the right tech tools to help your neurodiverse child?
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Traveling with Autism: 14 Essential Hacks for a Smoother Journey - Part 2 of 2
Ever found yourself dreading travel because of the unique challenges autism brings along? What if I told you 14 hacks could make your next trip a breeze?
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Traveling with Autism: 14 Essential Hacks for a Smoother Journey - Part 1 of 2
Ever found yourself dreading travel because of the unique challenges autism brings along? What if I told you 14 hacks could make your next trip a breeze?
Read MoreUnlocking Tess’s Potential: How a Simple Diet Change Transformed Her Health - Part 2 of 2
Have you ever wondered how the right diet could drastically improve your child's health, especially if they're dealing with complex medical conditions?
Read MoreUnlocking Tess’s Potential: How a Simple Diet Change Transformed Her Health - Part 1 of 2
Have you ever wondered if a simple change in diet could dramatically improve your child’s cognitive function and overall health?
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From Stares to Support: Navigating Public Reactions and Guiding Loved Ones in Caring for Your Child
What do you do when people stare at your child with a rare disease? How can you turn that awkward moment into an opportunity for connection?
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Eight Tools to Get Organized and Run Your Household Better
Are you looking to get organized and level up your productivity?
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Empowering the Neurotypical Sibling
Are you struggling to balance the needs of your neurotypical child while raising a sibling with a rare disease?
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Tess Goes to Camp
Quick update about Miss Tess and her adventures at summer camp.
Read MoreMedical Visits: Essential Moves for Rare-Disease Parents to Get Your Kid Feeling Better Without Depleting Yourself -- Part 2 of 2
How could you change your mindset about taking your child with a rare disease to the doctor?
Doctor visits can be overwhelming, especially when managing complex medical needs and balancing your family's well-being. This episode is about your mindset--learning to trust yourself and others.
1. Enlist two types of co-pilots for visits to make sure you don't miss anything.
2. Trust yourself, since you know your child better than anyone.
3. Hear from Harvard-educated pediatrician Dr. Bell about the best ways to help your doctor help you.
Tune in now to gain these actionable tips to make the most of doctor visits!
Medical Visits: Essential Moves for Rare-Disease Parents to Get Your Kid Feeling Better Without Depleting Yourself
Do you dread the exhausting ordeal of taking your child with a rare disease to the doctor?
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How to Get an Autism Spectrum Diagnosis and Why It Matters More Than Ever
Are you worried your child might be struggling with social interactions or communication, and wondering if it could be autism?
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Health Insurance: 7 Tips to Beat the Insurance Company and Get Your Family's Bills Covered
Have you ever felt like navigating insurance claims for your child with disabilities is a full-time job?
As a parent or caregiver of a child with disabilities, you’re likely dealing with an overwhelming number of medical appointments and insurance claims. This episode addresses how you can simplify this process and ensure you get the coverage you deserve without the added stress.
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Special Education: 25 Power Moves to Make Your Child Seen and Known at School - Part 2 of 2
Are you ready to navigate the complex world of special education and become the best advocate for your child?
This episode (part 2 of 2) dives into the challenges and triumphs of special education, offering insights that directly address the struggles many parents face today. If you’re seeking ways to better support your child’s educational journey and ensure their rights are upheld, this is a must-listen.
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Special Education: 25 Power Moves to Make Your Child Seen and Known at School - Part 1 of 2
Are you ready to navigate the complex world of special education and become the best advocate for your child?
This episode dives into the challenges and triumphs of special education, offering insights that directly address the struggles many parents face today. If you’re seeking ways to better support your child’s educational journey and ensure their rights are upheld, this is a must-listen.
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#494: Surfer Girl
I have watched you on the shore, standing by the ocean's roar. Do you love me? Do you, surfer girl?
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#493: The Eyes Have It
One day, in a nondescript office building in Portland, three adults give something to Tess. And she comes alive.
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