This week, part 2 of 2 about the Global Genes conference. I talk about the untiring advocates. Where they came from. What brought them here. And what makes them keep going.
OM Foundation - Bonner Paddock
https://1man1mission.org/
The Joshua Frase Foundation - seeking a cure or treatment for myotubular myopathy
http://www.joshuafrase.org/
Run For Rare - Noah Coughlan
https://www.run4rare.org/
Run For Rare - coming soon - documentary by Ezio Lucido
https://www.run4rare.org/documentary/
Saving Case & Friends - Hunter Syndrome Research and Advocacy Foundation
http://savingcase.com/