This week, ruffling feathers. What that means. What we know we need to do now, to get stuff done and help Tess. Part one of two about the Global Genes Rare Patient Advocacy Summit.
Tess's story, in The Atlantic: click here to read |
RAREcast - click here to listen to Matt Wilsey's episode |
The Grace Wilsey Foundation - Rare is not an excuse - click here |
Perlstein Lab, SF, CA - click here |
Ethan Perlstein's Blog - click here